Patient Profiles

Here you’ll find our repository of patient profiles. We are so honored to share these with you, and put a human face on Still’s disease. If you’d like to add your story, you can download the form HERE.

Jean’s Story

We are very excited to share another Still’s disease patient story with you. Because the Still’s disease population is incredibly varied, our goal in sharing these stories is to make sure we give a voice to as many different facets of the Still’s experience as possible. Not all patients have the privilege of sharing their…

Eric’s Story

We are incredibly excited to share Eric T. Majusiak’s story with you, as the first of our Still’s disease patient profiles. We asked Eric to be our first profile, because his nonprofit does such great work to spread awareness about HLH and Still’s disease. If you’re interested in signing up to share your story with…

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