A call to Action: Earlier Recognition, Research, & Treatment Options There’s a recent article in The Lancet Rheumatology by Bamidis et al. (2021) about a case of Still’s disease developed after COVID. We wanted to take a minute to share some highlights and bring attention to Still’s disease as a potential consequence of COVID-19 infection.Continue reading “Hot Topic: AOSD Diagnosis Post-COVID-19”
Author Archives: sdthe411
A Brief History of Still’s Disease
If you are going to stand on the shoulders of giants, it only seems fair that you should learn their names. History, however, transcends names in a textbook. A medical history is a chronicle of problem solving and an accumulated observational diary of patterns. Discovery by Sir G. F. Still It is easy to imagineContinue reading “A Brief History of Still’s Disease”
Jean’s Story
We are very excited to share another Still’s disease patient story with you. Because the Still’s disease population is incredibly varied, our goal in sharing these stories is to make sure we give a voice to as many different facets of the Still’s experience as possible. Not all patients have the privilege of sharing theirContinue reading “Jean’s Story”
“I do NOT have Rheumatoid Arthritis”
In our previous posts about Still’s disease, we have thoroughly reviewed the science behind the disease. As readers, you might have noticed we have been quite deliberate about not referring or comparing Still’s to any form of arthritis. We have focused the discussion on the severe complications of Still’s, including cytokine storms/MAS, blood clots, andContinue reading ““I do NOT have Rheumatoid Arthritis””
Season 1 Episode 2 – Sickcare vs Healthcare
For our second video, we dig into the U.S. sickcare system and what that means for patients with chronic disease. We’ve got a new page up that hosts these videos. Check out it out HERE. Episode 2 The U.S. “Sickcare” System: Navigating a Fragmented System not designed for complex care “Sickcare” vs “Healthcare” Reactionary medicineContinue reading “Season 1 Episode 2 – Sickcare vs Healthcare”
Season 1 Episode 1 – Introduction to Us
Welcome to our new video series on different topics. Our first topic is an introduction to us and who we are! Next, we discuss what it is like to have a rare and complex disease in the U.S. healthcare system. We will then be filming individual episodes digging deeper into insurance and treatment challenges andContinue reading “Season 1 Episode 1 – Introduction to Us”
Eric’s Story
We are incredibly excited to share Eric T. Majusiak’s story with you, as the first of our Still’s disease patient profiles. We asked Eric to be our first profile, because his nonprofit does such great work to spread awareness about HLH and Still’s disease. If you’re interested in signing up to share your story withContinue reading “Eric’s Story”
Still’s Disease Complications: Part I Primary Immune Deficiency Disorders
See the Introduction to the series HERE. Where Still’s Disease and Infections Meet As the first part of our series on Still’s disease complications, we are examining the innate immune dysregulation of Still’s and related immune system disorders and deficiencies. We wanted to start our discussion of Still’s disease complications with the ramifications of immuneContinue reading “Still’s Disease Complications: Part I Primary Immune Deficiency Disorders”
Still’s Disease Complications: Introduction
Imagine for a moment, you are in a casino and before you are two giant dice. The first has on each of its sides the various organ systems while the second is covered in the endless inflammation pathways of the immune system. In this casino, these are the only dice you may use to gamble.Continue reading “Still’s Disease Complications: Introduction”
Complex Patient Presents With….
Diagnosing Still’s disease Let’s recap Still’s is a rare systemic autoinflammatory disease with complex and aggressive complications. Still’s and its respective complications can be variable and capricious in presentation making a definitive diagnosis difficult. Diagnostic errors and delays to treatment are compounded by both limited physician knowledge regarding autoinflammation as well as patient knowledge regardingContinue reading “Complex Patient Presents With….”
Still's disease, the 411 